Loving with Chronic Illness
When you either have Chronic Illness or love someone with Chronic Illness, it can feel frustrating and debilitating to the relationship you want. Here are some things to keep in mind and strategies to keep you connected despite the emotion and physical pain.
The most important thing to remember is that our bodies do what they are trained to do. Whether it’s autoimmune or chronic pain from trauma or an accident, it’s doing what it thinks it needs to do to protect us against future invasion. So this pain is coming from something and the body is doing what it knows best, to protect.
The body responds to our emotions, so if you are angry, frustrated, hopeless, the body will respond with those chemicals and therefore physical reactions from those emotions. If we feel acceptance, compassion and patience, the body will respond as such, and allow for some of our own healing. This changes the nervous system’s message that it needs to continue to fight to protect, allowing it to eventually feel more safe in the “rest and digest” state. That does not mean this goes away, it doesn’t but it can lessen the triggers, the length of suffering and help the body in it’s process of healing as much as it can.
Here some things that can help you get into this state of acceptance, compassion and patience with Chronic Illness.
Acceptance: yes, it sucks but the body is doing what it’s programmed to do. It’s not broken, YOU are not broken. This only perpectuates the body’s need to fight against itself if we tell it constantly that it’s broken.
Compassion: You or your partner have been through hard things. Your body has done what it needs to survive this trauma. Thank it. Give it compassion for doing it’s best.
Partners: if you have a partner with chronic illness, know that it’s very real. The body is actually creating these physical responses to create the pain your loved one is experiencing. It does this without our own awareness usually but an overreaction of trauma responses that the body is recieving and reacting to unconsciously.
Patience: The more you fight it, the harder it will be. I know this part is HARD. Give the body the rest. If you can do something together to support the current state. You can read (or read to your partner), cuddle, tell stories, play a card game, get couples cards (Ester Perel has a game called “Where Do We Begin” that is very bonding with easy questions) gently rub your partner. Continue to tell yourself that you can get to what you need to later.
Partners: The more you can have patience for your partner, the less pressure and guilt they will feel about a state they can not control or stop. The more their system can feel safe in a connection with you, the less their body will need to protect itself. So these acts of love go a long way to the process.
Investigate: go beyond medical doctors. Look for holistic care, such as acupuncture, herbalism, massage, lymphatic massage, or other things to get the blood and energy moving helping the body to reroute the narratives that are stored. Write down your food intake, emotional status, physical movement to see if there are any connections to triggers that your body is recognizing.
Partners: this is not your job for them, but sometimes you might notice patters or connections that you can gently point out to them, or helping them in moments they are physically less capable to get what they need. It is not your job to be a caretaker, but it is to be a loving and supportive partner.
Know you and your partner will get back to life again soon. These moments are temporary and we move through them. Enjoy the good moments, knowing these harder moments can just be small set backs, pauses, time outs of life but there is still plenty of time to get back to life and the always present to do lists. Relationships are give and take. What does each person bring to the dynamic for this give and take relationship? Remember just because your body puts a pause on things, doesn’t mean you don’t contribute fully to your life with someone, make yourself a list if you need to.
